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Living with single-sided deafness (SSD) can be frustrating. You may miss conversations on one side, have to constantly turn your head, and feel left out in group discussions. However, technology can help. In this post, I will share my experience with the Oticon CROS hearing aid that I received free through the NHS. I will […]
What Are CROS Hearing Aids and How Do They Help with Single-Sided Deafness? Read More »
Living with the aftermath of acoustic neuroma surgery can be confusing, frustrating, and at times, deeply isolating. Some common symptoms include facial numbness, weakness in jaw, constant dryness in the eye, and a strange, salty or metallic taste that comes and goes. In my case, I also notice small cuts on my tongue and an
Understanding Facial Numbness, Dry Eye, and Taste Changes After Acoustic Neuroma Read More »
In my previous post, I explored how brain fog in acoustic neuroma (AN) is more than just a side effect of stress—it’s a genuine neurological phenomenon. Many of you shared your stories, and one theme stood out: “Now that I understand what’s happening, what can I do about it?” While you may be waiting for
Clearing the Haze: How to Cope with Mental Fog in Acoustic Neuroma Read More »
Yesterday, on 8th June 2025, something beautiful unfolded at Tittesworth Reservoir. Families arrived from across the country—Birmingham, Liverpool, Stoke-on-Trent—cars packed with people, food, laughter, and the promise of togetherness. We came with kids in the back seat, containers of biryani in the boot, and flasks of chai tucked between bags. Some of us hadn’t seen
After the Feast: A Rainy Walk, Warm Hearts, and the Road to Recovery Read More »
In a fast-paced world that often pushes us toward isolation, few things are more powerful than the act of storytelling. Stories connect us. They help us understand ourselves and each other. Whether whispered through tears or written in reflection, every story has the power to make someone feel seen, heard, and less alone. Why Stories
Building Community Through Shared Stories Read More »
By Amir Khesro When I first heard the words “acoustic neuroma”, I didn’t know what they meant. All I knew was that something inside me had shifted — physically, emotionally, and permanently. Acoustic neuroma is a rare, benign brain tumor that grows on the nerve connecting the ear to the brain. It may be noncancerous,
Facing the Fog: My Journey with Acoustic Neuroma Read More »
